Wednesday, September 16, 2015

An Update on Thomas

Wow. I don't even know how to adequately thank you all for the love, support, encouragement and prayers you've sent our way. Through my post yesterday I met so many brave mamas, received tons of doctor recommendations, connected with others who are also on this same journey and felt an overwhelming peace from the prayers. I wish I could respond to each and every comment but the truth is when we aren't at the doctors office I spend most of my time snuggling my little man in one arm while researching or updating our family with the other. I'm so thankful this blog allows me to reach so many of my friends at once too so I can spend that time focusing on Thomas.

Although we're facing a pretty significant long term challenge, I can't help but think about all of the mothers who have and will sit in the same exact chair during a well visit in my pediatricians office and receive much worse news than cataracts. My perspective has definitely changed quite a bit and I haven't stopped praising God for Thomas' overall health. This could have been worse. Much worse. 

So an update since I last popped in...

I awoke yesterday in a blissful mood before the reality of the day before hit me all over again. We had spent much of the night researching bilateral congenital cataracts and tried to envision what this new normal will be like. After digesting all of the overwhelming information we had received, I felt a tug at my heart to get a second opinion before our surgery this Friday. Without a doubt, this tug was a direct result from the prayers you all have been praying.

We have received lots of recommendations for the best pediatric ophthalmologists around the country but unfortunately don't have the luxury of shopping around and taking our time finding the perfect doctor. In fact, I have been struggling with the speed at which we had to make this huge decision and have to trust that God is in control here. As I mentioned in my first post, with each day that passes that Thomas is blind, his brain shuts down the development for his vision and our chances of visual restoration plummets significantly. So we knew we had to stay local to expedite this. That being said, there are only three doctors in Charlotte who specialize in pediatric cataracts. I decided to post to a local, private mommy Facebook group requesting any information I could get about these doctors and received over a dozen recommendations for one specific doctor that happens to be within walking distance to my house.

On Tuesday, at 7:56 a.m. I considered being that crazy mom standing outside the office with no appointment but refrained and instead took the slightly less crazy approach of calling the office over and over again until they opened. I was so thankful when they took my call right at 8 am, recognized my panic and urgency of our situation and agreed to squeeze us in that day in between patients to meet with "Dr. D" and his partner "Dr. G" who happened to be in the office that day too.

From the moment we arrived it just felt right. The staff, the nurses and both doctors were so sweet and comforting and made us feel like family. Dr. D agreed with our first doctor that Thomas has bilateral congenital cataracts and requires emergency surgery. He also did an ultrasound on his eyes to assure us that the issue is confined to the lens and the rest of the eye is healthy. No cancer, infection or retina detachment. From there, the information we received was a bit different from what we'd been told the day before. With over 20 years of this specific surgery experience he began to tell us that he believes Thomas will regain a good amount of his sight back over time with the help of the surgery, follow up surgeries, contacts, glasses and eventually a permanent intraocular lens implant. He quoted us a 10% risk of complications such as glaucoma which was a huge difference from the 40% risk we'd previously been told. When we asked if Thomas would live a "normal life" the doctor laughed and honestly thought we were kidding. His response was "OF COURSE! Why wouldn't he?! He won't be a fighter jet pilot but he can do anything he wants!" I hugged him. 

It was no question that we should go with Dr. D and his partner. They whisked us over to the scheduling office and set us up for surgery this Friday at 11:45 am for his right eye and another one two weeks later for his left eye.

Overall we are feeling very positive and optimistic. We believe that God is in control and is bigger than cataracts. He is the ultimate Healer. So I am fervently praying for peace, patience, wisdom and exactness for our doctors during surgery and complete restoration for Thomas' eyes. And heck, I'm even praying for Thomas' golf game. No prayer is too small, right?

Thank you again to all of you who have joined this journey with us and are praying alongside of us. We are so lucky and blessed by all of you. And if you don't mind, please schedule us in for prayer this Friday at 11:45 am! 

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93 comments:

  1. What a blessing to find these doctors! I can relate to these emotions you're feeling as I've been/am going through health issues with my baby boy. Trust your instincts and keep holding on to your faith. There is so much power in prayer and I will continue to pray for Thomas and your family!

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  2. Im so glad that you guys found doctors who you feel comfortable with, and have a plan going forward! Will continue to send prayers your way!!

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  3. GREAT news!!!!!!!!!!!!!! Prayer works! I've shared your story with so many. Tons of prayers heading y'alls way constantly!

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  4. Oh my gosh I'm so glad you got a second opinion! It's pretty amazing what doctors can do, so it sounds like Thomas is in good hands! Will be thinking of you and praying for your sweet boy!

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  5. Praise the Lord for your news! So very thankful that you have found such wonderful doctors. Continuing to pray for you all. XO

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  6. Oh I am in tears with the news in this update. I've been thinking and praying for you nonstop and will be honored to continue praying as Thomas faces these surgeries and recoveries. You are a true light in our world with your faith.

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  7. What great information!!!! I know how re-assuring it is when you "connect" with a doctor or surgeon, especially when they will be caring for you for a long time. I have prayed many times for you and for family since reading your first post and I will continue to do so!!

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  8. God is good!!!!! He will see you through this trial. Will be praying Friday!!!!!

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  9. Praying so so hard for you and that sweet baby! This doctor sounds fantastic and I'm sure that everything will go perfectly. Continue to keep us updated.

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  10. So happy to hear this update, praying hard for your precious Thomas, his doctors and y'all.

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  11. So happy to hear this news! I've been thinking of you since I read your last post!

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  12. You were definitely lead to this doctor for a reason!! Thinking of you all, and will be praying on Friday.

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  13. You are an amazing mama and women of God. So happy little by little the prayers are working...we'll keep them coming!! Xoxo

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  14. It is amazing what finding the RIGHT doctor can do! I'm so glad you found an answer to your prayers. Good luck with the surgery!

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  15. I'm so glad that you found these doctors and so glad that they helped you find a little bit of peace in this. Will be praying for you every day, but extra on Friday!

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  16. Hi Christina, I'm so glad to hear this. I was thinking of your family a lot yesterday. We are also in the Charlotte area and our little girl had strabismus surgery by a local pediatric ophthalmologist a few months back when she was just over a year old. Her doctor is also "Dr. D". I'm not sure if it's the same doctor but if it is you are in good hands! Good luck with the surgery, will be thinking of you all.

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  17. I prayed that you would get answers and find good doctors. Now I am praying for God to guide the hands of the doctors and for your family to feel peace from God's grace.

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  18. I got tears in my eyes as I read this update. I was talking to my husband last night about Thomas because I just couldn't get him (and your family) off my mind yesterday after reading your post. I cannot imagine your feelings and thoughts through all of this. I am praying for you and your family over the next few weeks and the months to come.

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  19. I never comment on blogs (and I read many). But since reading your post yesterday, I have not been able to get you and your family out of my mind. Maybe it's because my little girl is just a few weeks older than Thomas and I can't imagine something happening to my sweet, innocent baby.
    And reading this update, I'm in tears with happiness and relief for your family. Thanks for taking the time to update your readers!

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  20. Such good news and answered prayers already! Continuing to prayer for Thomas and all of you. The group you mentioned is truly a blessing and I'm so glad you were able to get such a wonderful recommendation!

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  21. What a hopeful, joyful, and peaceful update of good news! It sounds like that doctor is going to take VERY good care of your baby boy. You and Thomas will be in my thoughts and prayers for even more good news with the days to come.

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  22. I'll definitely, definitely be praying for you all this Friday! So glad that you found a doctor you can trust and some peace! xoxo

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  23. And im crying !! Such great news..thinking of your family.

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  24. Awesome news from the new doctors! So glad that you were able to get quick and helpful recommendations - it sounds like these doctors are great to work with. Will be praying for your little guy this week!

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  25. Fantastic news! It never hurts to get more opinions. I'm so glad you felt called to do this. I know it's scary but maybe it's better that the surgery has to be so soon. If you had more time I think you'd make yourself crazy! Praying & I'm setting an alert on my phone right now for Friday at 11:45.

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  26. That is amazing news! Your new doctor sounds great! I will definitely be thinking of you guys on Sunday and sending out all the good vibes!

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  27. God is in control and we are believing for healthy eyes for Thomas! Your blog family is holding you at this time.

    Linds @ Not A Mom

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  28. So glad to hear that you got better news than yesterday! I wish him a speedy recovery and I wish you and your family all the strength in the world!

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  29. Oh Christina I feel so out of the loop! I am so sorry to hear this but so glad yall found a doctor like the one you've described! Thomas will be ah-mazing I just know it and in the meantime my family is sending nothing but prayers and good vibes your way for your little man! xoxo Thinking of ya'll!!!

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  30. In tears hearing this wonderful update. Prayers friend.

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  31. I'm so glad to hear things are falling into place! How blessed you are to have such great resources and support nearby!

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  32. So happy you are able to take swift action and it sounds like you'll be in great hands with your doc! Continued prayers for you and your family!

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  33. I'm crying again for you all & our little FB group for pointing you in the right direction. Sending prayers for Friday & comfort for you guys now too.

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  34. I'm so glad to hear this news. You all remain in my prayers.

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  35. I am so happy you found the new doctors and have a sense of peace. What a difference their outlook is. Sending up prayers for Friday. And who knows...Thomas might surprise everyone and end up being a professional golfer. God IS the almighty Healer. God bless!

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  36. Wow what a blessing! I just got chills!!! Praying for you guys all week!

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  37. Continued prayers will be sent! God is so good and he will continue to show you what is right. Sending lots of love!

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  38. ..and if not, he is still good! I've had this on my mind lately and thought it would be a good thing to share. Praying for baby, mommy, daddy and big sis too. Our god is bigger!

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  39. Our God is GREATER! Wonderful, wonderful news.

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  40. I will be on my knees tonight in prayer for Thomas, and again on Friday. Our God is a God of miracles!

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  41. That mama instinct and faith is shining bright in you right now! Thank you for sharing your story I know you are helping so many other people with your words. God is so so good and His plan is a great one! You and your family are our prayers!

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  42. I randomly found your blog a while ago, but have never commented before this. Please know that someone, somewhere in northwestern Pennsylvania is praying for your baby,his family and health care providers.

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  43. this is AMAZING news mama... so glad to know that God was telling you to pray and He would show you the way!!! More hugs and well wishes coming to you over the next few days as surgery nears... LOVE YOU

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  44. Wonderful news. Praying for you and your family in the coming days.

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  45. Christina, I am so full of thankfulness for your family. Wonderful news- although it will be a long journey, a doctor with that kind of attitude is a great first step. Continuing prayers coming your way! God is great!

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  46. Best news reading this! It was meant for you to reach out and find those awesome doctors. Sounds like that sweet baby boy are in good hands. Prayers will continue and most especially on Friday morning. Big hugs.

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  47. Oh mama. I just got happy tears. Wonderful news and I am so happy you were able to get a second opinion. Could that doctor's answer have been more perfect? Will be thinking of you and your beautiful family. xoox

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  48. So glad you trusted your momma's instinct and had that 2nd opinion. Continuing to pray!!!

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  49. God is good, all the time! So happy to hear y'all got a 2nd opinion & they have eased some of your anxieties & such. Will continue to keep each of you in my prayers & especially Friday!

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  50. Our God is an awesome God, indeed. I am SO glad that you feel more peace and assurance knowing that the doctor whom you've chosen has such positive, high expectations for Thomas' outcome. Thomas will remain on our prayer list for sure, and I can't wait to hear more positive updates, mama!:)

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  51. Glad to hear you got such an amazing second opinion! Best of luck on Friday!

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  52. Talk about an answer to prayers! Our God is faithful and He provides. Continuing to cover you guys in prayer over these next several days!

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  53. Praise the lord! I was thinking about you and your family a lot yesterday and am glad you went with your gut to get another opinion. Sending prayers on Friday!!

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  54. God is SO good! I've shared your story with my followers and asked for continued prayers. I'll be thinking about y'all on Friday!

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  55. Oh my!!! What a tremendous blessing to find such compassionate office! I think you are in good hands!!

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  56. I am just catching up on blog reading and am saddened to hear about Thomas's condition. I know you and your family are doing the best thing for him and I was glad to hear you found a doctor with a more positive outlook on his prognosis. Thinking of you guys and praying for his upcoming surgery.

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  57. Such great news! I'm so glad you went with another opinion and found the best fit for your little man. I'll thinking about y'all and praying for little Thomas on Friday!

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  58. Oh Christina, the tears that are just pouring out right now. I'm so glad you were able to get a surgery for this Friday! AND he will regain eye sight?! Holy cow. Our God is a healer. He has plans to prosper us, not to bring us harm. So many prayers for you and your family, I'll be lifting you and the surgeons up continually!

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  59. Big hugs and lots of prayers for your family from Newfoundland, Canada!

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  60. Have been thinking of you and sharing your story ever since yesterday. So happy you got some good news and will be thinking of you and sending prayers and good thoughts for his surgery this Friday. xoxoxoxox

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  61. So glad you got better news :) I will continue praying and send a special thought on Friday!

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  62. Praise God for His care and protection. May He comfort you and your husband at this critical time. Prayers will continue for each of you and esp. baby Thomas!

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  63. Crying tears of relief for you right now. What an amazing update! I will continue to pray for your peace and this journey. God is good :)

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  64. Crying tears of relief for you right now. What an amazing update! I will continue to pray for your peace and this journey. God is good :)

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  65. What amazing doctors! It sounds like you have the best possible care. I will be praying for your family tomorrow.

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  66. Always in our thoughts and prayers - especially tomorrow x

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  67. so thankful for this good news, the tug on your heart and all the prayers headed to you and your family. i will definitely be praying for you all during the surgery tomorrow! xo

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  68. i got tears in my eyes reading this, you were so perfectly directed to that doctor, and what a relief it must have been to find a match that is so positive and optimistic! Continuing to pray for your sweet boy!

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  69. I'm sending prayers your way for Thomas and your entire family. I love reading your blog and I was literally brought to tears reading your posts just now. I will be thinking of all of you tomorrow morning - God Bless.

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  70. So thankful and happy to hear the good news that things are looking better! Thank you for updating everyone on his condition. I know that cannot be easy! He is in my thoughts and prayers!

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  71. What a blessing to have found these Dr's!! You were so perfectly directed to them from a God who is so much bigger! Sending continued prayers for the surgery xo

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  72. OH i like this a lot! I'm with you, this sounds meant to be and so much more positive! Continuing prayers!!

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  73. So so glad y'all found some amazing doctors that you love and know what they're doing! So glad Thomas should regain his sight as well! Praying the surgery goes well tomorrow and for mom and dad since I'm sure it'll be difficult!

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  74. Yay for second opinions and prayers working as they always do!

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  75. Will be keeping you all in my prayers! Thank God for MIC! :)

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  76. Of course! Prayers all day for y'all. And yes, God is our healer, the divine doctor :) Thank you for saying that! And what an answer to prayer... Grateful that you found a doctor who knew their stuff. Jesus, we trust in You!

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  77. Prayers for you, Thomas and the rest of the family. You are obviously amazing people and god will take care of you!

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  78. What great news! Good luck tomorrow!

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  79. Prayers and love dear friend!!!!!! <3

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  80. Prayers for Thomas and your sweet family!!! What a blessing to have found such wonderful and caring doctors. Good luck and thinking of y'all this morning!

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  81. Prayers are with Thomas and your entire family. I am so sorry you are dealing with this.

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  82. Such amazing news about being led to great doctors! Continued prayers for Thomas and your family!

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  83. Just seeing this update and saying a prayer for you and Thomas! I'm so glad you were able to get a second opinion and the prognosis is better than you originally anticipated.

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  84. Just reading about sweet Thomas! I will be praying for you & your precious family. I am so thankful for the Lord's direction through this difficult process - so glad you found such a great doctor. Please let us know how everything went! You're a strong Mama & you have lots of people lifting you up in prayer!!

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  85. I just read this post out loud to Todd 😊 I cried again--this time they were very hopeful joyful tears. I will be praying big time over the next few weeks and months. 😘 and you ABSOLUTELY pray for that boy's golf game!!!!!

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  86. Sending huge hugs to you and your family! We will be praying endlessly until we receive the next update! Xo, Stephanie

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